This paper describes the systematic scoping literature review and synthesis of the information into relevant thematic clusters which can be considered for incorporation into a patient engagement resource kit. Descriptions of the approach to involving stakeholders in decision making at the National Institute for Health and Clinical Excellence (NICE) stressed that “involving people is a serious business” [ 37], p. The challenge for healthcare institutions is to locate or develop, and implement the mechanisms, tools and resources essential for preparing and supporting patients, their families, healthcare providers and healthcare administrators to effectively and successfully practice patient engagement.

Keeping track of the barriers (legal, political, administrative, professional, communication, personal or resources) as a frame of reference, would help identify tools, guides and strategies to avoid or deal with them before they became a fatal flaw in the patient engagement initiative or process. Although the literature identified a variety of patient engagement toolkits and guides (Table 2 – A.

From the literature, key evaluation components were identified: participation or response rates of consumers, consumer influence on decisions, health care outcomes or resource utilization, consumers’ or professionals’ satisfaction with the involvement process or resulting products, cost, critical factors for success, and limitations of methods or processes. The first section of the book concludes with some of the findings of the We are Family report, which recognises the need for a holistic approach to family ministry, one which provides the dual strands of ministry and support. Frankish James C, Kwan B, Ratner Pamela A, Higgins Joan W, Larsen C: Challenges of citizen particpation in regional health authorities. She helpfully proposes three different theological perspectives which can offer practitioners a foundation for our ministry with families: Holiness at home, Trinity as family and the Jesus shaped family, all of which should involve reaching out to and including the outsider and have an intergenerational aspect where possible. Including one or more patients who had contextual knowledge and experience related to the engagement activity would be of most benefit, for example, “a consumer who has undergone transplant surgery, would be far better able to advise on the needs of consumers in these circumstances, than they would to provide advice on proposed changes to mental health legislation” [ 32], p.

The term infrastructure was chosen here for the financial and human resourcing and related supports needed for patient engagement. We wish to especially thank Jennifer Rees, Executive Director of Patient Experience, Patient Engagement Department within AHS.The book has reflective questions and theological reflections and can be used both as an exploration tool and a mirror to existing ministry. This term was chosen for several reasons, although the literature does use alternative terms Lansky described the current state of patient engagement ‘infrastructure’ within the United States, and believed that a lack of national health information and an absence of a centralized management and finance system limited the ability for patients to play a more active role [ 49]. In addition, as outcomes of the scoping review the themes identified what knowledge, skills, tools, guides, models and resources existed and could be used or adapted by patients/families, providers or leaders for initiating and developing patient and family engagement. Department of Psychiatry and Behavioral Sciences, University of Washington School of Medicine, 2815 Eastlake Ave E Ste 200, Seattle, WA, 98102, USA. The second part of the book goes on to examine what this might look like in practice, under the heading of “Seven Habits for Highly Effective Family Ministry”.